The language and media in which patients and caregivers are most supported to tell their stories will garner the most dynamic impact for you as a biotechnology and healthcare organization.
ABOUT ME
Bio: Hi! I’m Amanda. Enneagram 2. Patient Advocate (personally and professionally). Mama to a toddler and a pup on earth, and twin babies in heaven. Instagram fiend. Murder mystery show lover (Law and Order SVU, Chicago PD, Castle, Stitchers, Instinct, etc.). Audiobook obsessed. Learning to switch task instead of multitask.
I became involved with patient advocacy in 2009 when I began experiencing symptoms of Crohn's disease. It took 6.5 years to get correctly diagnosed & another 2 years to find the treatment that put me in remission (Remicade), but learning to share my story, listen to other patients journey's & do my own research helped me to advocate for myself - to be heard, for additional testing to be done, & for changing treatment plans until they actually worked. I live with Crohn's disease, Rheumatoid Arthritis, Migraines, Insomnia, and Adrenal Insufficiency/Inappropriate Sinus Tachychardia - another condition which took more than 5 years to correctly diagnose.
Professionally, I'm both certified as an Infertility and Postpartum Doula, and I was working full time with a small biotech pharmaceutical company developing medications for Rare Disease Patients. Today, I find myself with much more enthusiasm and connection working as a consultant, varying my client experience and the projects I say yes to.
I am a passionate and results-driven Clinical Copywriter, Content Creator, Project Manager, and Patient Advocate with extensive experience in Narrative Medicine, patient engagement, clinical trial patient recruitment and retention, as well as translation of medical jargon to relatable and understandable language.
I am skilled in developing health communication outreach materials, programs and training, effective survey design and implementation, and coordinating community outreach efforts specific to geographic locations and medical indications. I am driven by the goal of increasing the accessibility of treatment and support for all patients.
My hope every day is to help empower patients, patient advocates, advocacy groups and the biotechnology companies that work with them moving medication from molecule to market.
Professionally, I'm both certified as an Infertility and Postpartum Doula, and I was working full time with a small biotech pharmaceutical company developing medications for Rare Disease Patients. Today, I find myself with much more enthusiasm and connection working as a consultant, varying my client experience and the projects I say yes to.
How can I help your organization clearly share your mission, materials, and the voices and needs of your patient communities?
Work with me!
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Content Writing
I'm a content writer and clinical copywriter with a passion for utilizing the power of language to help patients discover how Narrative Medicine can support communication with healthcare providers and healthcare outcomes.
I’m also dedicated to creating and distributing, and educating medical professionals, scientists and patient advocates on how the reverse is also both critical and true.
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Project Based Work including White Papers
I am skilled in developing project based work to be customized per client:
*Health communication outreach materials, programs and training
*Effective survey design and implementation
*Coordinating community outreach efforts specific to geographic locations and therapeutic indications
*Specializing in Narrative Medicine and Patient support
I am driven by the goal of increasing the accessibility of treatment and support for all patients.
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Clinical Copywriting for Marketing, Patient Materials and/or Press Releases
I have a unique ability to craft compelling stories and create engaging content, with services including:
*Helping a patient consolidate their diagnostic odyssey & advocacy journey to be short and truly as impactful as possible
*Sharing first hand patient & caregiver stories
*Creating and transliterating disease specific education
*Improving patient-provider communications
*Clinical trial recruitment & retention
*Distilling complex scientific and medical information into digestible & engaging components
Lilly Stairs, Founder at Chronic Boss Collective and Patient Authentic
Amanda is simply outstanding. As a business owner, I am extremely cautious about the employees and contractors I welcome into my inner circle. Amanda is one of them. She delivers high quality work in a timely manner and is truly a jane of all trades. Amanda can go from composing a powerful patient story one day to seamlessly project managing event on another. I can always count on Amanda to bring talent, organization, professionalism, passion, and heart. I strongly recommend hiring her to support your work!